the Treacher Collins syndrome

http://www.bbc.co.uk/news/health-11780938

Like many 26-year-olds, Jono Lancaster has a job he loves, a beautiful girlfriend and takes pride in his appearance.

He looks happy. He gets with the ladies.

  On 11/18/2010 at 3:42 PM, Gocab said:

He looks happy. He gets with the ladies.

He seems as happy as Droopy.

treacher collins sufferers exist on a spectrum, this guy's all right but best not do a google search. Doesn't get much worse than looking like a crumpled muppet with no facial bones...

I just did one, it's goatse material indeed.

  On 11/18/2010 at 3:41 PM, Ranky Redlof said:

Like many 26-year-olds, Jono Lancaster has a job he loves, a beautiful girlfriend and takes pride in his appearance.

lol. i have a feeling that backfired a bit, no?

im a perfectly normal 26-year old, mr. bond.

*invokes blobfish*

i wonder if juliana wentmore is still alive. she used to be popular in fyad and byob.

Not to be too much of a cunt, but it looks like his face is melting.

no bones underneath your face will do that.

http://www.julianawetmore.net/

  On 11/19/2010 at 5:13 AM, Hoodie said:

no bones underneath your face will do that.

 

http://www.julianawetmore.net/

these pictures just kill me.

It makes me think about the coping mechanisms that some parents must just instantly gain when dealing with some awful condition like this in a child. taking pictures like there's nothing completely fucked up about her face... "oh what do you mean her face is fucked up... it's society's expectations that are fucked up!"

lol sorry, had 3 very strong martinis.

  On 11/19/2010 at 6:13 AM, Franklin said:

  On 11/19/2010 at 5:13 AM, Hoodie said:

no bones underneath your face will do that.

 

http://www.julianawetmore.net/

 

 

these pictures just kill me.

 

It makes me think about the coping mechanisms that some parents must just instantly gain when dealing with some awful condition like this in a child. taking pictures like there's nothing completely fucked up about her face... "oh what do you mean her face is fucked up... it's society's expectations that are fucked up!"

 

lol sorry, had 3 very strong martinis.

for juliana's parents, the coping resembles "it's god's plan!" more than anything else.

i wonder how fucking stupid you have to be to refuse an abortion when doctors tell you your baby will be born without a face. i mean, come on. it's a life of hell for the child too.

zack parson's on something awful wrote a really great article about juliana a while back. it's been taken down since, but i found it on the way back machine: http://web.archive.org/web/20070622181050/http://www.somethingawful.com/d/news/im-here-ruin.php

definitely worth a read. pictures are not safe for life though.

aka Iggy Pop Syndrome

  On 11/18/2010 at 3:36 PM, the anonymous forumite said:

 

 

*disfigures himself, hopes to get a job he loves and a fit girlfriend. fails. dies*